Sat,
02 Aug 2003
Fingers
Crossed
Hey
everybody. It's Sat and I'm about to leave and go
to the hospital. Another crazy couple days - - what
other kind are there anymore?
Since the last email Jade has continued to have his
fever. Thursday it never got below 100 to 101 and
spent most of the day around 104. They had to cool
his room down, give him Tylenol and pack him in ice
to get it to finally start to go down. By late Thurs
it was coming down slowly and by Fri mid-morning was
back to about 99. Fri night it was on the rise again.
They have done multiple cultures with all results
coming back negative (which is good news other than
it's a mystery what the cause of the infection is.)
Jade still has no interest in food. No major mouth
sores yet but his digestive system is still in complete
upheaval. He is sleeping ok at nights. When his fever
was so high on Thurs he dozed in and out of it most
of the day. He was more awake/alert/talkative on Fri
though.
Jade had to have another platelet transfusion (first
one was on Thurs) on Fri since his fever burned off
about half of the platelets he was given the day before.
They may have to do another blood transfusion today
depending on his hermatocrit count. On Fri his white
count was at .1 which is a new record for him. They
will start the neupogen shots on Sunday to help boost
his white count/immune system.
It's definitely a roller coaster which is normal with
this kind of procedure. He talks to Garrett on the
phone and we're hoping Jade feels well enough for
Garrett to visit on Sunday. Garrett always listens
wide-eyed as he hears his dad's voice on the phone.
Thanks for the continued love, support, encouragement
and faith/prayers. We can't tell you what a difference
it makes. Have a good weekend!
Much love and gratitude..............Tanya and co.