Wed,
02 Jul 2003
5
Hour Meeting
Hey
there. It's the end of the day, and that's ok with
me. We had the 5 hour meeting (not to be confused
with a 5 hour seige) with the Bone Marrow Transplant
Team. Jade's counts are definitely bottoming out today.
We have an all time low for white blood count (.7)
and everything else is within low ranges. Hopefully
we'll start to climb out of it in the next day or
two.
Today Jade had his Neupogen tripled from 480 to 1260
every day. Instead of one shot I know will give him
three a day. We have some pain meds which hopefully
will help curb the bone pain he's had and may continue
to have with tripling the dose. The plan is to be
ready to harvest on Monday. Every morning I'll give
him his three shots and draw his blood, a bone marrow
nurse will come to the house and get the viles of
blood and take them to the lab and let us know where
we're at. If all goes well we'll harvest Mon as I
said and it could take two to five days. We were told
they needed 5 million stem cells for every 1 kilogram
you weigh. Harvesting isn't painful itself - - they
simply take blood out of his triple lumen/neostar
line in his chest. He just gets to sit and read, watch
videos for five to six hours for two to five days.
After harvesting next week, the week of the 14th Jade
will have another CT scan, echocardiogram and pulmonary
function test. Then he should be ready to be admitted
to the hospital the 23rd of July if all goes well.
Right now the main goal is to have the harvesting
go well then we'll focus more on the next steps.
Jade is in pretty good spirits tonight. We are both
tired (broken record syndrome, I know) but doing ok.
Still can't believe it's the 4th of July this week.
We get to see some of our friends from high school
who are doing a 100 mile bicycle ride on the 4th and
will be ending it here at our house. Jade and I are
excited about that. Hope somebody has to have a burnt
hot dog for me on the 4th......need to have at least
one burnt hot dog smothered in ketchup every summer.
Ahhhh, love summer BBQs. I'm not sure we'll get around
to actually BBQing this year or not. Take care and
have a wonderful holiday and we'll keep you posted!
Much love..................Tanya and co.
