Wed,
25 Jun 2003
Hump
Day
Hi
there. It's just me and Jade should be coming home
any minute from chemo so I'd thought I'd take a minute
and give a quick update.
We're happy to be halfway through the week. Jade is
tolerating the chemo fairly well this week. Definitely
some negative side effects as always but he remains
so incredibly positive, strong and hopeful. He has
been retaining some water, feeling light-headed/dizzy,
very exhausted and hot (sometimes feverish but other
times he's hot and his skin is super warm to the touch
from all the chemicals just under his skin.) It seems
this B Round of chemo messes with him mentally and
emotionally as much as it does physically but he is
fighting it all hard.
We got a phone call from KUTV - CH 2 (local CBS station)
and they want Jade and I to come on this Sunday at
5:30 on their Take Two News program to discuss the
situation and a little about insurances. Jade really
wants to go and talk as long as he's feeling good.
I informed the reporter we'd have to play it by ear
to see if he's be up to it or not. So I'll call them
Sat night or Sun morning and confirm but that's the
plan. I am so appreciative of the help/attention we
are receiving but I have to admit I really wish I
could have my simple, anonymous life back!
From all reports I get the garage sale in Centerville
this Sat should be quite impressive. (Big thanks to
Marsha, Diane and crew!) Jade and I marvel at the
wonders that have occurred in the past seven to eight
weeks. If I'm honest, I am a little scared and sad
to have the fund raising over. Don't get me wrong,
I am thrilled to have the money necessary for the
transplant, however, I was telling Jade the other
day, the fund raising was something tangible that
others could help us with. I know everyone is still
supportive and will help in the coming weeks but as
bizarre as it sounds, it seems the focus now needs/will
come back onto Jade and I and what we have/need to
do in the coming weeks. I know this doesn't make much
sense but it feels like what lies ahead is something
that Jade and I have walk through together/alone with
all of you cheering us on. I didn't anticipate feeling
this so it's taken me a little by surprise. I am so
happy the fund raising is over so soon so everyone
can have some summer fun and enjoy their 4th of July
and other vacations. But as I stated earlier, it's
a little bittersweet. If this has made sense to any
of you, you're as sleep deprived as I am!
As far as other updates, Sadie is doing much better.
The Rymadil (sp?) is helping her and extra love/pets
have helped too! The basement is coming along. We
have had so many people (co-workers, neighbors, family)
come and work so hard! It's very difficult to be upstairs
and hear them working and not be able to help. We
should have it all done by the second week of July.
It'll be done a week to ten days before Jade goes
into the hospital. (It'll be nice to not pretend to
be a general contractor any more too!)
Thanks for everything. Jade and I talk daily about
how fortunate we are to have the help, love and support
from you. It sustains us. I don't think I can comprehend
how many people think of us and pray for us. Wow.
Truly amazing. Thank you for your encouragement and
hope. We're soaking all of it in. We'll keep you posted
with how the next couple days go. Thanks again........
Much love...................Tanya and co.