29 Jan 2005 Jade passed away at 8:51 am while I held his hand 24 Jan 2005 Attempted another tap - not enough fluid; Switched to Hospice 21 Jan 2005 2 ½ liters drained from abdominal cavity (ultrasound guided) 18 Jan 2005 Central line removed; 5 ½ liters drained from abdominal cavity (ultrasound guided) 12 Jan 2005 CT scan (all tumors grew by 1 or 2 cm; pneumonia and new cyst on right kidney) 10 Jan 2005 3 liters drained from abdominal cavity (ultrasound guided) 1 Dec 2004   Appt with oncologist; decide to take Dec off for memories 29 Nov 2004 Consultation with Radiation Dr. 17 - 19 Nov 2004 Trip to Disneyland for sanity break and memories 12 Nov 2004 CT scan (all tumors grow by a few mms; one small tumor doubled) Oncologist wants to switch to Gemcitabine 25 Oct - 5 Nov 2004 Chemo #8 (Irinotecan and Temzolamide) (Not covered by insurance co.) 11 Oct 2004 CT scan (3 mm growth on tumors) 27 Sept - 8 Oct 2004 Chemo #7 (Irinotecan and Temzolamide) (Not covered by insurance co.) 7 - 17 Sept 2004 Chemo #6 (Irinotecan and Temzolamide) (Not covered by insurance co.) 30 Aug 2004 CT Scan (no growth detected with tumors) 16 - 27 Aug 2004 Chemo #5 (Irinotecan and Temzolamide) (Not covered by insurance co.) 26 July - 6 Aug 2004 Chemo #4 (Irinotecan and Temzolamide) (Not covered by insurance co.) 30 July 2004 Surgical Consultation at HCI 26 July 2004 Appt at HCI 22 July 2004 CT Scan (no growth detected with tumors) 6 - 16 July 2004 Chemo #3 (Irinotecan and Temzolamide) (Not covered by insurance co.) 21 June 2004 CT Scan (0.2 cm of growth on tumors) 7 - 11 June 2004 Chemo #2 (Cytoxan and Topotecan) (50% covered by insurance co.) 24 May 2004 Appt at HCI with chest x-ray (mild pneumonia) 18 - 22 May 2004 Chemo #1 (Cytoxan and Topotecan) (50% covered by insurance co.) 17 May 2004 Double-implanted central line placed 11 May 2004 CT Scan (original tumor doubled again; more visible) 26 April 2004 Consultation at MD Anderson, Houston, TX 12 April 2004 Consultation at Huntsman Cancer Institute (HCI), SLC, UT 5 April 2004 Oncology appt 2 April 2004 CT scan (original tumor tripled; 6 - 7 new visible) 10 March 2004 Final BMT appt before transferred back to oncology 28 Feb 2004 Tumor detected on CT films 25 Feb 2004 BMT appt/ CT scan Jan 2004 Bi-monthly BMT appts; Jade back to work!!! 1 Dec 2003 Pulmonary function test 28 Nov 2003 CT scan and complete work-up for Day #84 post-transplant 14 Nov 2003 Skin biopsy checking for GVH disease Nov 2003 Weekly BMT appts Oct 2003 Bi-weekly BMT appts Sept 2003 Tri-weekly BMT appts 5 Sept 2003 TBI radiation for Jade/ Jared harvested Day #2 Jade has donor stem cells transplanted 4 Sept 2003 Jared stem cells harvest Day #1 August 2003 Bi-weekly BMT appts 8 August 2003 Jade released from LDS Hsptl @ Day #18 28 July 2003 Stem Cells (Jade) as rescue drug 22 July 2003 Day One of Hospitalization for Stem Cell Trnsplnt; Day #1 of marrowoblative chemo (Stem cell transplant not covered by insurance co.) 21 July 2003 BMT consultation; family mtg. 14 July 2003 CT scan, echocardiogram, pulmonary function test 7 -8 July 2003 Stem Cell Harvest (Jade) @ LDS Hsptl 2 July 2003 BMT consultation; family mtg. 23 - 27 May 2003 Chemo #4 VP 16 (Covered by insurance co.) 20 May 2003 Central line placed (double removed; triple lumen placed) 11 May 2003 Bone Marrow Biopsy 10 May 2003 Pulmonary Function Test 9 May 2003 Radiation consultation 28 - 30 May 2003 Chemo #3 CAV (Covered by insurance co.) 5 -9 May 2003 Chemo #2 VP 16 (Covered by insurance co.) 23 April 2003 BMT consultation at LDS Hsptl 12 April 2003 Hospitalized with hemorraghic cystitis of the bladder 9 - 11 April 2003 Chemo #1 CAV (Covered by insurance co.) 7 April 2003 Bone scan 4 April 2003 Central line placed (double lumen); CT scan 3 April 2003 Surgery follow-up; lab work; bone scan 2 April 2003 Oncology appt; DSRCT diagnosis 22 March 2003 Discharged from Cottonwood Hsptl 19 March 2003 Consultation with oncologist 17 March 2003 Surgery (de-bulking of tumors) at Cottonwood Hsptl 13 March 2003 Consultations with two surgeons 10 March 2003 Consultation with General Practitioner “Suspicious of lymphoma or sarcoma” 7 March 2003 CT Scan 28 Feb 2003 CXD CT Scan appt 21 Feb 2003 Appt with General Practitioner